Intellectual Disabilities Resources
Help for Caring
“Help for Caring for Older People Caring for an Adult with a Developmental Disability” is a 137-page manual for area agencies. Chapters include “Why Should Older Carers be Targeted for Assistance?,” “Organizing Your Community,” “Developing Your Agency’s Initiative,” “Cultural Aspects to Working with Carers,” and “Key Issues in Working with Carers.” The document also contains a number of appendices of resources and sample materials.
Aiding Older Caregivers
This 55-page toolkit, “Aiding Older Caregivers of Persons with Intellectual and Developmental Disabilities,” is an accumulation of materials, resources and best practices in the topic, produced as a direct result of three years of collaboration-building workshops in 33 different states. Sections include Demographics, Collaborations, Legislation, Best Practices, References, Resources, and Quick Reference Fact Sheets.
The Frontline of Learning Disability (Spring, 2006)
The Frontline of Learning Disability (Winter, 2005)
Feature: Dementia
- Overview of dementia issues in intellectual disability by Philip McCallion, Mary McCarron and Dr Martin McLoughlin
- Care planning and care management for people with intellectual disabilities and dementia by Evelyn Reilly
- Maintain communication in dementia by Dr Philip McCallion
- Down Syndrome and Alzheimer Dementia – some common medical issues and implications for palliative and end of life care by Jean Lane
- Assessment of dementia in persons with intellectual disabilities: challenges and opportunities by Mary McCarron
- Redesigning day programmes by Tara Nickle and Philip McCallion and Environmental modification and dementia: key recommendations by Philip McCallion and Mary McCarron
- Some resources on intellectual disabilities and dementia by Philip McCallion and Mary McCarron
Web sites
Sites are listed alphabetically.
Administration on Developmental Disabilities
Main website for the U.S. Administration on Developmental Disabilities
ARC of the United States
This is the main portal site from the ARC of the United States, an organization of and for people with mental retardation and other developmental disabilities and their families. A number of useful links are provided as well as an on-line store for books and videos and information on policy issues, conferences, and news items.
Operated by the ARC of the United States and partners, this site provides
state by state information and sites related to accessibility, Americans
with Disabilities Act, Assistive Technology, Health and Medical Issues,
and other sites users and providers are likely to benefit from.
Association of University Centers on Disabilities (formerly AAUAP)
The site of the Association of University Centers on Disabilities (formerly
AAUAP). Includes state by state listings and links for research centers.
Australian Center on Quality of Life
Operated by the Australian Center on Quality of Life, this site offers links to instruments, publications, and bibliographies on quality of life issues.
Family Village
A web portal to a “global village” of information, resources, and communication opportunities for persons with cognitive disabilities and for families and providers.
Health Information
This site provides information to health care providers regarding developmental disabilities resources. It offers CME/CI training opportunities for physicians in California.
Mental Health and Learning Disabilities
The Mental Health and Learning Disabilities Portal aims to be a worldwide, interactive, personalized forum for the sharing of information by people whose lives are touched by mental health problems and/or learning (developmental) disabilities. This includes people with mental health problems or learning disabilities, their parents, friends, carers, educators and therapists, as well as researchers, legislators and volunteers.
National Down Syndrome Society
The site of the National Down Syndrome Society has an on-line bookstore, information on education and research programs, and information and referral functions. Web links include sites offering information in Spanish, information on support groups, and links to other persons with Down Syndrome.
New York State Developmental Disabilities Planning Council
The New York State Developmental Disabilities Planning Council is a federally
funded state agency and is responsible for developing new ways to improve
the delivery of services and supports to New Yorkers with developmental
disabilities and their families.
The DDPC is responsible for developing new ways to improve the delivery of services and supports to New Yorkers with developmental disabilities and their families. The Council focuses on community involvement, employment, recreation and housing issues faced by New Yorkers with developmental disabilities and their families.
The DDPC affects positive systems change through grant programs that fund such activities as:
- Demonstration programs
- Training for families and staff
- Outreach to unserved and underserved populations
- Support to communities
- Inter-agency collaboration and coordination
- Systems design and redesign
To a large extent, DDPC programs are developed in direct response to the concerns and ideas voiced by consumers, families, service providers, policy-makers and other professionals.
