Documents and Policies
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Dementia & intellectual Disability Guidelines
- Dementia in Older Adults with Intellectual Disabilities
A report on the State of Science on Dementia in older adults with Intellectual Disabilities by the IASSID Special Interest Research Group on Ageing and Intellectual Disabilities. March 2009. - Diagnosis of Dementia In Individuals with Intellectual Disability
Report of the AAMR-IASSID Working Group for the Establishment of Criteria for the Diagnosis of Dementia in Individuals with Intellectual Disability, October 1995. - Supporting Persons with Intellectual Disability and Dementia: Quality Dementia Care Standards
Trinity College Dublin, 2010 - Epidemiology of Alzheimer Disease in Mental Retardation Results and Recommendations from an International Conference
Report of the AAMR-IASSID Workgroup on Epidemiology and Alzheimer Disease. December 1995. - Supporting Persons with Intellectual Disability & Advanced Dementia
Executive Summary. Fusing the Horizons of Intellectual Disability, Palliative & Person-Centred Dementia Care, EXECUTIVE SUMMARY - Practice Guidelines for the Clinical Assessment and Care Management of Alzheimer and other Dementias among Adults with Mental Retardation
Report of the AAMR-IASSID Workgroup on Practice Guidelines for Care Management of Alzheimer Disease Among Adults with Mental Retardation. June 1995
Tool Kit
Aiding Older Caregivers of Persons with Intellectual and Developmental Disabilities – a Tool Kit for State and Local Aging Agencies (PDF, 1.2 MB) Written by DiAnn L. Baxley, Matthew P. Janicki, Philip McCallion, and Anna Zendell. Made possible through a grant from the Administration on Aging to The Arc of the United States, in collaboration with the Center on Intellectual Disabilities, University at Albany, NY, and the Rehabilitation Research and Training Center on Aging with Developmental Disabilities at the University of Illinois at Chicago.
Florida Developmental Disabilities Council, Inc.
The following resources were developed by DiAnn Baxley, Project Director, Anna Zendell, and Jeanne Matich-Maroney as part of a grant from the Florida Developmental Disabilities Planning Council, in collaboration with the University at Albany, Center on Intellectual Disabilities. The materials are designed to open dialogue between school and home on the topic of providing sexuality education to children and adolescents with intellectual or developmental disabilities. The resources are copyrighted by the FL DD Council, but are free to download. Please contact the FL DD Council at the address listed on the inside cover of each document for mass reproduction.
- Sexuality Education for Children and Adolescents with Developmental Disabilities: An Instructional Manual for Educators of Individuals with Developmental Disabilities (PDF, 2.5MB)
- Sexuality Education for Children and Adolescents with Developmental Disabilities: An Instructional Manual for Parents of and Individuals with Developmental Disabilities (PDF, 2.5MB)
- Life Span Holistic Sexuality Education for Children and Adolescents with Developmental Disabilities: An Annotated Resource List (PDF, 218 KB)
- Life Span Holistic Sexuality Education for Children and Adolescents with Developmental Disabilities: Sexuality Policy and Procedures (PDF, 158KB)
Alzheimer’s Disease International (ADI)
Alzheimer’s Disease International (ADI) is a federation of national Alzheimer societies around the world. These national societies represent family members of persons with Alzheimer’s disease and related disorders. The societies offer information and help to Alzheimer families within their
countries — and in other countries, as well.
- ADI Charter of principles (English) (PDF, 28 KB)
- Spanish version of ADI Charter of principles (PDF, 29 KB)
- Alzheimer’s disease: Help for caregivers (English) (PDF, 57 KB)
- Spanish version of Alzheimer’s disease: Help for caregivers (PDF, 85 KB)
The Edinburgh Principles
These principles and guidelines were developed by the Edinburgh Working Group on Dementia Care Practices at a special meeting held in Edinburgh, Scotland (February 5-7, 2001) and called by the University of Stirling (Scotland), the University at Albany (USA), and the University of Illinois at Chicago (USA) to define internationally applicable working practices for the community supports of adults with intellectual disabilities affected by Alzheimer disease and related dementias.
